Tag Archives: Internet & CF
What I am thinking at this very moment
[adult language] I just want cystic fibrosis gone, exorcised from my body like an evil spirit, where it would hang in the air and I’d shoot it with the most powerful handgun in the world, the .44 magnum. So says Dirty Harry. … Continue reading
Filed under CF Guy Stuff, cystic fibrosis, Health care
Those fleeting moments of feeling well
Today I read a very good post by Mandi at runsickboyrun.com. http://runsickboyrun.blogspot.com/2010/07/you-feel-like-what.html She does some nice detective work figuring out what’s it like to not feel well with CF. For me, she touches upon one of the hardest parts of … Continue reading
Filed under cystic fibrosis, Fear, Health care
The Language of CF – Battle Stations
I read a fantastic blog essay by Tiffany Christensen, aka Sick Girl Speaks. She discusses the use of the “battle metaphor” with cystic fibrosis and whether it’s time to drop it. I recommend reading her point of view. You can … Continue reading
Filed under cystic fibrosis
Monday Musings – School, Dreams and a New CF Narrative
I applaud@cffatboy’s recent college graduation. Three cheers for his hard work and dedication. No one will ever steal that accomplishment from him, except old age when he’s 101. His journey reminded me of when I graduated college at age 32. I … Continue reading
Filed under cystic fibrosis
A New Weapon Arrives – fear.less Magazine
Two subjects I think about a lot are cystic fibrosis and fear. I know the exact point CF became a disease of fear for me. That story is sitting in my blog’s “drafts” folder. I haven’t been able to finish … Continue reading
Filed under cystic fibrosis, Fear
Solitary Confinement, the 60s and Bob Flanagan
I read an article about the damage solitary confinement does to prisoners. One might say that’s not a bad thing, a little payback for their horrific crimes. I won’t debate that here. What was interesting and relevant to CF was … Continue reading
Filed under cystic fibrosis
