Tag Archives: Hemoptysis
3, 3, 3, 2, 2, 2, 1, 1, 1, blast off to worlds unknown
Well that happened. 9 days of oral steroids tapering to 1/2 a tablet for another 10 more days. And what a fun time it was riding the prednisone rocket. “Please make sure your seatbelt is fastened, your seat is an … Continue reading
Filed under cystic fibrosis, Fun & Humor
Derailed by autumn bleeding
I’ve felt off this week, not 100%. The weather flipped from hot to cold in one day and with it my equilibrium. Today the autumn bleeding arrived. The good news is the bleeding isn’t bad – yet. But it’s there … Continue reading
Filed under cystic fibrosis
No one lives forever
Par-a-noia strikes deep into your life it will creep it starts when you’re always afraid step out of line the man come and take you away – Buffalo Springfield I have a plane reservation for Monday. I don’t remember how … Continue reading
Filed under cystic fibrosis, Fear, Travel
BREAKING NEWS: Blogger derails in midnight crash
Mar 10, 7:32 PM EST By HENRY CHINASKI Associated Press LOS ANGELES (AP) – An obscure blogger was injured in a mental derailment in a northern suburb of Los Angeles early this morning. The incident happened at approximately 12:30 a.m. … Continue reading
Filed under Adventures in Los Angeles, CF Guy Stuff, cystic fibrosis, Dogs, Fear, Fun & Humor
When my mind goes south
[Adult language and themes] I’ve been trying to figure out what happens when I have bad days and feel like ending it. I wrote the camel story the other day because it described that it’s not the single straw but … Continue reading
Filed under cystic fibrosis, Fear
It’s alive! IT’S ALIVE! (In Dr. Frankenstein voice)
Bleeding from my lungs is a living creature or entity. I’m not sure what to call it. I just know it’s alive and looks for opportunities to take me down and make me pay for everything bad I’ve done in … Continue reading
Filed under cystic fibrosis
Ocean waves of despair
[I apologize in advance for this post. I had to get it out and off my chest so I can move on to better days.] I’ve been struggling for days trying to describe a certain funk I’m experiencing. As with … Continue reading
Filed under cystic fibrosis
Two weeks living like a Zooble
I’m happy because 2010 didn’t end with a hospitalization due to coughing up blood. Instead, I spent the two weeks with my daughter. I wish I could say that we got a lot done or did something important like discover … Continue reading
Filed under cystic fibrosis, Fun & Humor
“Me Time” Is Overrated
My sense of isolation has increased over the years as this disease has worsened. During the past three months and the hemoptysis surprise parties I’ve had, I’ve felt more isolated. I have friends, but it’s hard to plan getting together. … Continue reading
Filed under cystic fibrosis
Just around the corner to the light of day
Can one have a mid-life crisis with CF? Many years ago, no one with CF lived long enough to have one. And clearly, barring any miracle of science and new lungs, I’ve passed my midlife point. Does “late-life crisis” sound … Continue reading
Filed under cystic fibrosis
