Tag Archives: fighting cf
Parody of Mad Libs – Cystic Fibrosis Version
[Remember the rules - ask someone else for the missing words. Be careful, I'm not sure what I was thinking when I wrote this, or which direction the experiment will go.] Having cystic fibrosis requires ________(adjective) treatments and regular visits … Continue reading
Filed under cystic fibrosis, Fun & Humor
Today’s butt-kicking brought to you by the name I shall not speak
There’s nothing like a bad Pulmonary Function Test (PFT) to ruin your day. Or your life. And, as I have internet friends going through hell right now with their results and breathing, I’ll leave my crying for another post. But … Continue reading
Filed under cystic fibrosis, Fear, Health care
Autumn stumps me
I’m not sure why autumn doesn’t like me. It’s been a trend for many years for it to kick my ass up and down and back again. All three of my embolizations have been in the fall, including one in … Continue reading
Filed under cystic fibrosis, Human Nature
How I spent (and didn’t spend) my summer vacation
I didn’t spend summer in the hospital. [Fox applauds, then passes out.] I feel like I won the lottery by not going in, though the pattern for me has long been one without summer hospital stays. With falling leaves, colds … Continue reading
Filed under Adventures in Los Angeles, cystic fibrosis, Dogs, Fun & Humor, Labradors
Moganko earns global fame (and his buddy Josh, too)
Congratulations to Josh and Moganko. The article and video segment are awesome. http://www.myfoxtwincities.com//dpp/health/maplewood-puppeteer-cheers-children-with-cystic-fibrosis-aug-15-2011
Filed under cystic fibrosis
Letter To God, 042411
Dear God, I don’t believe in you. But I believe in the right for others to believe in you. But I don’t. Believe in you. My wife and daughter do, however, believe in you. So, for their sake, I’m hoping … Continue reading
Filed under cystic fibrosis, Fear
I am Jenga Man
After 15 days of the greatest fun I could ever imagine, I’m home from my vacation in the hospital. I have the deepest Tobra tan ever on my kidneys. Too bad they don’t show. I’m surprised I survived this jaunt. … Continue reading
Filed under cystic fibrosis
The view from the floor
I spent quality time on the floor with my Thumper yesterday, trying to beat my lungs into submission. At least it spared me from searching more “flu or cold” web sites. I’m voting flu, which doesn’t make sense, as I … Continue reading
Filed under cystic fibrosis
DEFCON 2
The virus, flu, whatever it is, took a big swipe at me last night. I rarely get fevers, but it was 101.6 on the radio dial, not that there are radio dials anymore. Why does bad stuff always happen in … Continue reading
Filed under cystic fibrosis
No one lives forever
Par-a-noia strikes deep into your life it will creep it starts when you’re always afraid step out of line the man come and take you away – Buffalo Springfield I have a plane reservation for Monday. I don’t remember how … Continue reading
Filed under cystic fibrosis, Fear, Travel
