Monthly Archives: December 2010
I was just thinking – National CF T-Shirt Day
Let’s have a national cystic fibrosis awareness day in which everyone fighting this disease wears a special CF T-shirt. If the idea plays out the way I think it might, one would wear a special CF T-shirt in public on … Continue reading
Filed under cystic fibrosis
Happy Holidays
I wish everyone the best of holidays. Thank you for your visits and comments, and I hope for only the best of health and happiness for each of you and your families. Here are a few fun photos from our … Continue reading
Filed under cystic fibrosis, Love
“Me Time” Is Overrated
My sense of isolation has increased over the years as this disease has worsened. During the past three months and the hemoptysis surprise parties I’ve had, I’ve felt more isolated. I have friends, but it’s hard to plan getting together. … Continue reading
Filed under cystic fibrosis
Just around the corner to the light of day
Can one have a mid-life crisis with CF? Many years ago, no one with CF lived long enough to have one. And clearly, barring any miracle of science and new lungs, I’ve passed my midlife point. Does “late-life crisis” sound … Continue reading
Filed under cystic fibrosis
Shallow thoughts from an idiot
I thought I’d do more. Be more. Help others. Be more successful. All in all, when I look back on my life, I feel like I failed. I’m not sure I’d use the word failure, but I might be somewhere … Continue reading
Filed under cystic fibrosis, Fear
Saturday Funhouse – Fox Returns with Inventions
Ladies and gentlemen, Fox here. I’m back. Did you miss me? If you didn’t, you can kiss my furry butt. I’m Fox and my middle name is “polarizing.” There is no middle ground with me. So, for those who love … Continue reading
Filed under cystic fibrosis, Fox, Fun & Humor, iPad
In the Cement Mixer
[adult language and anger warning] It feels like someone, I mean CF, threw me in the back of an empty cement mixer and turned up the rotation speed to high. Then, as if that wasn’t enough, someone, I still mean CF, … Continue reading
Filed under cystic fibrosis, Fun & Humor, Health care
A Tale of Two Hands
To the untrained eye, my hands in the following photograph may not seem very different – each has an IV in it. However, to me, this picture represents the two types of experiences one can have in the hospital: excellent … Continue reading
Filed under cystic fibrosis, Health care
Star Date: 120210 – I’m not really here
It’s day five in the zoo. I’ve been moved from the step-down floor, with its myriad of wires attached to my body and slot machine heart monitor ringing JACKPOT at four in the morning, to the hospital’s CF wing, which … Continue reading
Filed under cystic fibrosis, Health care
