Monthly Archives: June 2010

100th Blog Post – Thank you – See you in a week

The above video includes one of my favorite songs. If you like music while you read, please press play. *********************************************************************************************** To everyone who has visited and read my posts and the comments, I have the following words for you: Thank … Continue reading

17 Comments

Filed under cystic fibrosis

My Friend Nanos

Hello, on the last Saturday of June. Yesterday, I was tweeting with my friend @nanosmakemepuke, who, BTW, has one my favorite Twitter names of all time. In the future, we may find out that actual nanos were doing more than … Continue reading

4 Comments

Filed under cystic fibrosis

Fox’s Communications Tips: Speaking to RTs

Grrrrrr, Fox here. I’m hung over and irritable because I loaned my nurses to a blogging buddy and he’s not returning my calls. I hope my team comes back in time for my midnight dose. I’ve spent the day deep in … Continue reading

12 Comments

Filed under cystic fibrosis, Fun & Humor

Letter To My Daughter – 6/23/10

[Part two of a two-post blog. Here's part one: http://unknowncystic.wordpress.com/2010/06/22/switzerland-crumbles-neutral-no-longer/] Dearest Daughter of the future, If the moon falls from the sky and pulverizes me, or Fox’s girlfriend accidentally mixes radiator fluid in the punch again, or CF takes its final … Continue reading

7 Comments

Filed under cystic fibrosis, Love

Welcome to Joshland’s latest post

I just read Welcome To Joshland’s new post. I’m sending him some California sun, a six pack of Fuck-off CF to drink, and my flail. Fox is sending you his nurses, Josh. He says he is not responsible for any … Continue reading

4 Comments

Filed under cystic fibrosis

Switzerland Crumbles – Neutral No Longer

[This is part one of a two-part blog posting] I so enjoyed my vacation in Switzerland . . . A blogger’s recent post has upset me. And I’m not sure why I’m so upset because the blog’s author is someone … Continue reading

42 Comments

Filed under cystic fibrosis, Love

Fox’s Adventures in Los Angeles – Concerts on the Green

Hello, Fox here. Unknown is on my shit list again after yesterday’s “I’m lucky” post. I asked him if he wanted to write another one of those sugar fests while he’s coughing up a lung doing his treatments. Judging by … Continue reading

5 Comments

Filed under Adventures in Los Angeles, Fun & Humor

I am the luckiest person alive – Redux

I have new readers and friends; and several wrote excellent comments this week. I’m thankful they did. So, I feel it’s important, after my recent posts “live from the hole,” which sounds like a great name for a concert album, … Continue reading

10 Comments

Filed under cystic fibrosis

Communication Breakdown

“Communication Breakdown, It’s always the same, I’m having a nervous breakdown, Drive me insane!” -Led Zeppelin When I started this blog for my daughter, I wanted to leave behind an accurate record of what I went through fighting cystic fibrosis. … Continue reading

4 Comments

Filed under cystic fibrosis, Health care

Message from Fox – I’m Pissed

Dear Readers, Fox here. And I’m a bit irritated with my yellow labrador of a creation, Unknown. Here’s what went down. I’m standing by the poolside of my buddy’s Malibu Mansion tonight and feeling good about life again. Ginger, god … Continue reading

6 Comments

Filed under Fun & Humor, Health care